Rare Disease Spotlight: Disease Burden, Unmet Needs, and Amplifying the Patient Voice, Managed Care Insights into IgA Nephropathy and Duchenne Muscular Dystrophy

Pricing: Free for Members and Non-Members

Course Description

Over 300 million people worldwide are living with one or more of over 7,000 identified rare diseases, each presenting unique clinical, economic, and healthcare resource challenges for managed care professionals. This session spotlights two distinct diseases – IgA Nephropathy (IgAN) and Duchenne Muscular Dystrophy (DMD) – examining the evolving therapeutic landscape and future trends in treatment. Attendees will explore the patient’s journey, focusing on treatment value, shared decision-making, and access to care for these rare conditions. This session will also highlight managed care strategies that integrate patient perspectives and innovative therapies, empowering professionals to improve health outcomes and ensure equitable access for those affected by IgAN, and DMD.

Target Audience

Pharmacists who practice in managed care settings.

Learning Objectives

  1. Define the clinical, economic, and healthcare resource utilization burden of IgA Nephropathy (IgAN) and Duchenne Muscular Dystrophy (DMD).
  2. Summarize the current landscape and future trends of therapies for IgAN and DMD.
  3. Examine the patient's journey and perspective on IgAN and DMD treatment value, share decision-making, and access to care.
  4. Discuss managed care considerations to incorporate the patient value and access to innovative therapies into managed care decision-making for improved health outcomes.

Commercial Support

This activity is supported by an independent medical education grant from Calliditas Therapeutics, Alexion, AstraZeneca Rare Disease, and ITF Therapeutics LLC, as part of a larger grant program, additionally supported by independent medical grants from Agios Pharmaceuticals, Inc., Genentech, Inc., and Pfizer Inc.

Course summary
Available credit: 
  • 1.25 ACPE
    The Academy of Managed Care Pharmacy is accredited by the Accreditation Council for Pharmacy Education as a provider of continuing pharmacy education.
Course opens: 
11/13/2025
Course expires: 
12/31/2026
Cost:
$0.00

Ami Gopalan, PharmD, MBA, FAMCP

Senior Vice President, Strategic Content and Growth Optimization
PrecisionAQ
Chicago, IL

Steven Kheloussi, PharmD, MBA, FAMCP

Principal Consultant
Kheloussi Consulting, LLC
Wilkes-Barre, PA

Disclosures

Faculty/Reviewer/Planner​

Reported Relevant Financial Relationships​

Ami Gopalan
Faculty		Employee: Precision Medicine Group
Steven Kheloussi
Faculty

Disclosed no relevant financial relationships.​

Curtis Wander
Peer Reviewer

Disclosed no relevant financial relationships.​

Brittany V. Henry
Planner		Disclosed no relevant financial relationships.​

The Academy of Managed Care Pharmacy (AMCP) is accredited by the Accreditation Council for Pharmacy Education as a provider of continuing pharmacy education.

ACPE UAN: 0233-0000-25-039-H01-P • Activity Type: Knowledge-Based
Contact Hours: 1.25
Release Date: November 13, 2025 •  Expiration Date: December 31, 2026
Activity Fee: Free for Members and Non-Members

Participants should claim continuing pharmacy education (CPE) credit for this home study activity only if they have not claimed credit for the live activity presented at Nexus 2025. CPE credit will be processed through the AMCP Learn portal and reported directly to CPE Monitor. Please allow 72 hours for processing and posting in your NABP account.

To receive credit for an online activity you must:

  • Review the full content of the activity.
  • Successfully complete the post-test (required to pass with a score of 70% or higher, it may be taken a maximum of three times).
  • Complete a specific activity evaluation.

Available Credit

  • 1.25 ACPE
    The Academy of Managed Care Pharmacy is accredited by the Accreditation Council for Pharmacy Education as a provider of continuing pharmacy education.

Price

Cost:
$0.00
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