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ForwardRare Disease Spotlight: Disease Burden, Unmet Needs, and Amplifying the Patient Voice, Managed Care Insights into Sickle Cell Disease and Hemophilia
Pricing: Free for Members and Non-Members
Course Description
The low prevalence associated with rare diseases presents distinctive challenges for managed care professionals. Considering the evolving therapeutic options for rare diseases and the critical role the patient journey plays in formulary decision-making, this program will spotlight two distinct diseases – Sickle Cell Disease and Hemophilia – to highlight unique aspects of the patient journey in relation to treatment advances. By examining the burden of disease, unmet needs, and managed care considerations across these conditions, this session aims to enhance managed care pharmacy knowledge and confidence in understanding the patient perspective, identifying treatment gaps, and navigating the latest management strategies.
Target Audience
Pharmacists who practice in managed care settings.
Learning Objectives
- Define the clinical, economic, and healthcare resource utilization burden of Sickle Cell Disease and Hemophilia.
- Summarize the current landscape and future trends of therapies for Sickle Cell Disease and Hemophilia.
- Examine the patient's journey and perspective on Sickle Cell Disease and Hemophilia treatment value, share decision-making, and access to care.
- Discuss managed care considerations to incorporate the patient value and access to innovative therapies into managed care decision-making for improved health outcomes.
Commercial Support
This activity is supported by an independent medical education grant from Agios Pharmaceuticals, Inc., Genentech, Inc., and Pfizer Inc., as part of a larger grant program, additionally supported by independent medical education grants from Calliditas Therapeutics, Alexion, AstraZeneca Rare Disease, and ITF Therapeutics LLC.
Angela Luong, PharmD
Senior Clinical Consultant
Pharmacy Strategies Group (PSG)
Minneapolis, MN
Drake Reiter, PharmD
Director, Pharmacy Operations
Priority Health
Grand Rapids, MI
Disclosures
Faculty/Reviewer/Planner | Reported Relevant Financial Relationships |
| Angela Luong Faculty | Disclosed no relevant financial relationships. |
| Drake Reiter Faculty | Advisor: Avalon Healthcare Solutions; Consultant; BioMedical Insights, Advisor, Consultant; Capyision, Consultant; COEUS, Advisor, Consultant; Comprehensive Care Sustainability Collaborative (Impact Education & National Bleeding Disorders Foundation, Advisor; Eversana, Consultant; GLG. Consultant; Havas, Consultant; Health Institutes Research Center (HIRC), Consultant; Impact Education, Advisor, Consultant, Faculty/Speaker; MMIT, Consultant; SUN Pharma, Advisor, Consultant |
| Janna Evans Peer Reviewer | Disclosed no relevant financial relationships. |
| Brittany V. Henry Planner | Disclosed no relevant financial relationships. |
The Academy of Managed Care Pharmacy (AMCP) is accredited by the Accreditation Council for Pharmacy Education as a provider of continuing pharmacy education.
ACPE UAN: 0233-0000-25-052-H01-P • Activity Type: Knowledge-Based
Contact Hours: 1.25
Release Date: November 13, 2025 • Expiration Date: December 31, 2026
Activity Fee: Free for Members and Non-Members
Participants should claim continuing pharmacy education (CPE) credit for this home study activity only if they have not claimed credit for the live activity presented at Nexus 2025. CPE credit will be processed through the AMCP Learn portal and reported directly to CPE Monitor. Please allow 72 hours for processing and posting in your NABP account.
To receive credit for an online activity you must:
- Review the full content of the activity.
- Successfully complete the post-test (required to pass with a score of 70% or higher, it may be taken a maximum of three times).
- Complete a specific activity evaluation.
Available Credit
- 1.25 ACPEThe Academy of Managed Care Pharmacy is accredited by the Accreditation Council for Pharmacy Education as a provider of continuing pharmacy education.