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Rare Disease Resources

eLearning (CPE Credit Available)

  • Rare Disease Spotlight: Disease Burden, Unmet Needs, and Amplifying the Patient Voice, Managed Care Insights into IgA Nephropathy and Duchenne Muscular Dystrophy
  • Rare Disease Spotlight: Disease Burden, Unmet Needs, and Amplifying the Patient Voice, Managed Care Insights into Sickle Cell Disease and Hemophilia

"In Their Words" Patient Journey Collection

  • Ami's Patient Story: IgA Nephropathy
  • Kate and Logan's Patient Story: Duchenne Muscular Dystrophy
  • Kevin's Patient Story: Sickle Cell
  • Nathan's Patient Story: Hemophilia B

Unscripted - The AMCP Podcast (CPE Credit Available)

  • Unscripted - IgA Nephropathy: Exploring Treatment Advances and Managed Care Considerations
  • Unscripted - Understanding IgA Nephropathy and the New 2025 KDIGO Guidelines
  • Unscripted - Duchenne Muscular Dystrophy: What Truly Matters to Patients and Caregivers
  • Unscripted - Sickle Cell Disease: Measuring Burden, Managing Pain, and Improving Care
  • Unscripted - Hemophilia: Patient Burden, Innovation, and Managed Care Strategy

 

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