Pricing: Free for Members and Non-Members

Wednesday, February 11, 2026

Program Description:

To participate in eLearning Day, you must register for each session individually by clicking the "Register" tab above and selecting the sessions you would like to attend.

11 am-12:15 pm ET

Rare Disease Spotlight: Disease Burden, Unmet Needs, and Amplifying the Patient Voice - Managed Care Insights into Hereditary Angioedema and Beta Thalassemia

Rare diseases pose significant challenges for managed care, requiring innovative solutions and a deep understanding of patient needs. This webinar will spotlight two rare diseases – Hereditary Angioedema (HAE) and Beta Thalassemia – that exemplify the complexity of diagnosis, treatment, and long-term management. Through discussion of emerging therapies, patient journeys, and managed care strategies, attendees will gain practical insights for improving access, supporting adherence, and advancing equitable care for those affected by rare diseases.   

This activity is supported by an independent medical education grant from Agios Pharmaceuticals, Inc., Ionis Pharmaceuticals, Inc., and KalVista Pharmaceuticals, Inc., as part of a larger grant program, additionally supported by independent medical education grants from PTC Therapeutics US, Inc., UCB Inc., and argenx US Inc.

2-3:15 pm ET

Rare Disease Spotlight: Disease Burden, Unmet Needs, and Amplifying the Patient Voice - Managed Care Insights into Myasthenia Gravis and Phenylketonuria

Rare diseases affect hundreds of millions globally, presenting complex challenges in clinical care, resource allocation, and patient access. This webinar will explore the realities of living with rare conditions, spotlight two disease states – myasthenia gravis and phenylketonuria (PKU). Participants will examine advances in treatment, the evolving patient experience, and the impact of managed care strategies designed to improve outcomes and equity. By exploring these two distinct diseases, the session aims to illustrate how innovative therapies and patient-centered approaches can transform care for those affected by rare disorders.

This activity is supported by an independent medical education grant from PTC Therapeutics US, Inc., UCB Inc., and argenx US Inc., as part of a larger grant program, additionally supported by independent medical education grants from Agios Pharmaceuticals, Inc., Ionis Pharmaceuticals, Inc., and KalVista Pharmaceuticals, Inc.

To Join Live Sessions:

• Join live sessions from your Pending Activities list by clicking the individual session name and then "Take Course." OR
• Click the "join session" link in the registration confirmation email; a separate email will be sent for each session you register for.